A Holiday Guide for the Chronically Ill…

“It’s the Most Wonderful Time of the Year”, or so the song says.  A season where friends and family come together and share meals, presents, and time together.  We anticipate it to look like a Hallmark Christmas Special.  A happy family traveling with a car full of packages while the kids are behaving the back […]

Pots is a Turd…

“How do you feel he asked?”  I looked at him with eyes wide open.  Words would not come out of my mouth.  I had plenty to say!  So much in fact, I barely slept the night before because I wanted to make sure I articulated EXACTLY how I was doing.  Yet there I sat, mouth […]

Will I Ever Be That Girl Again?

I wrote an entire blog post, erased it, and have been staring at the screen completely dumbfounded.  How do you explain the unexplainable?  How can you graciously share the reality for so many, when the reality is not a simple description?  I feel I need to preface this post by saying I have the most amazing […]

The Truth Behind the Smile…

Marshmallows…it all started with marshmallows!  For those of you who know me, know marshmallows and I have tight bond.  It’s a safe food.  I don’t know how or why, but I do not have negative reactions when I eat them.  So, it is imperative we always have these little soft cloud-like gifts from heaven at […]

Where is Your POTS?

“Where is your POTS?” she asked me with a confused yet curious look on her face. Innocently waiting for an answer, she looked at my body trying to find this elusive POTS.  I held back my laughter and began to describe what was different about my body.  I explained how my body cannot do what […]

Forever Free…

Today is my grandmother’s funeral. She was 88.  She was 5 feet tall which always seemed so miniscule compared to her spunk, sass, stubbornness, and sense of humor.  For years, I said I would one day write a book filled with quotes from her.  You never knew what would come out of her mouth next, […]