There was a knock at the door. In walked the doctor. I had been in the hospital for eight days having numerous tests run to find the source of my illness. At this point, I had searched for eight long years to find a diagnosis. The only reason it became imperative to find the answer […]
Yes, I was the girl who spent way too many years trying to fit into a “dress”. My perfectionist complex reared its ugly head in nearly every aspect of my life. But let’s use this example since I literally wanted to fit into the dress. I wanted to be the perfect size. In my mind, […]
“It’s the Most Wonderful Time of the Year”, or so the song says. A season where friends and family come together and share meals, presents, and time together. We anticipate it to look like a Hallmark Christmas Special. A happy family traveling with a car full of packages while the kids are behaving the back […]
“How do you feel he asked?” I looked at him with eyes wide open. Words would not come out of my mouth. I had plenty to say! So much in fact, I barely slept the night before because I wanted to make sure I articulated EXACTLY how I was doing. Yet there I sat, mouth […]
I wrote an entire blog post, erased it, and have been staring at the screen completely dumbfounded. How do you explain the unexplainable? How can you graciously share the reality for so many, when the reality is not a simple description? I feel I need to preface this post by saying I have the most amazing […]
Marshmallows…it all started with marshmallows! For those of you who know me, know marshmallows and I have tight bond. It’s a safe food. I don’t know how or why, but I do not have negative reactions when I eat them. So, it is imperative we always have these little soft cloud-like gifts from heaven at […]
“Where is your POTS?” she asked me with a confused yet curious look on her face. Innocently waiting for an answer, she looked at my body trying to find this elusive POTS. I held back my laughter and began to describe what was different about my body. I explained how my body cannot do what […]
For some time I have considered writing a thank you letter to POTS. Maybe it’s the southern gal in me that knows you always send a thank you note no matter what you thought of the event (bless their heart). Or maybe I am learning to be thankful in all seasons. Who knows? Dear POTS, […]
When life pulls and pushes you in every direction… Bow low and worship. When your heart feels as though it may explode… Bow low and worship. When you feel as though your closest friends and family have forsaken you… Bow low and worship. When the report you receive from the doctor is devastating… Bow low […]
This morning I lingered a bit longer in bed, not by choice, but out of necessity. The POTS symptoms greet me each morning before I even step onto the floor. The spinning, tremors, weakness, etc. are with me every step of the way as I pack lunches, make sure teeth have been brushed, hugs and […]
Lily in Grace 
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