Living Well When You Are Not Well…

There is a significant measure of strength one must ascertain in order to withstand the elements of daily life when living with chronic illness.  The mental fortitude one must tap into takes great aptitude as well as sheer will.  You never know the depth of strength you have within until you have no other option […]

And Just Like That Everything Changed…POTS

In a moment, a simple breath, life as she knew it disappeared.  How can you go from being active to suddenly bedridden?  This unexpected turn of events generated more questions than answers.  Had she known even an ounce of information as to what had transpired, she may have responded accordingly.  But she was blindsided.  An […]

A Great Doctor is Priceless…

There was a knock at the door.  In walked the doctor.  I had been in the hospital for eight days having numerous tests run to find the source of my illness.  At this point, I had searched for eight long years to find a diagnosis.  The only reason it became imperative to find the answer […]

A Holiday Guide for the Chronically Ill…

“It’s the Most Wonderful Time of the Year”, or so the song says.  A season where friends and family come together and share meals, presents, and time together.  We anticipate it to look like a Hallmark Christmas Special.  A happy family traveling with a car full of packages while the kids are behaving the back […]

The Truth About Pots…

“How do you feel he asked?”  I looked at him with eyes wide open.  Words would not come out of my mouth.  I had plenty to say!  So much in fact, I barely slept the night before because I wanted to make sure I articulated EXACTLY how I was doing.  Yet there I sat, mouth […]

Will I Ever Be That Girl Again?

I wrote an entire blog post, erased it, and have been staring at the screen completely dumbfounded.  How do you explain the unexplainable?  How can you graciously share the reality for so many, when the reality is not a simple description?  I feel I need to preface this post by saying I have the most amazing […]

The Truth Behind the Smile…

Marshmallows…it all started with marshmallows!  For those of you who know me, know marshmallows and I have tight bond.  It’s a safe food.  I don’t know how or why, but I do not have negative reactions when I eat them.  So, it is imperative we always have these little soft cloud-like gifts from heaven at […]

Where is Your POTS?

“Where is your POTS?” she asked me with a confused yet curious look on her face. Innocently waiting for an answer, she looked at my body trying to find this elusive POTS.  I held back my laughter and began to describe what was different about my body.  I explained how my body cannot do what […]