If you find yourself feeling lonely right now, as though no one understands, you are not alone. Your journey is yours to walk, that is true. But, how you choose to walk the tightrope known as Pots is your choice. I am not speaking of the physical symptoms you are unable to control. I would […]
Talk about a loaded question…”How are you doing?” Well, let’s see. How am I really doing? How do I want to be doing? Or how do we move past this question the quickest? It’s not you, it’s us. Yes, I realize that is the best breakup excuse ever. But genuinely, we mean it. We don’t […]
In a moment, a simple breath, life as she knew it disappeared. How can you go from being active to suddenly bedridden? This unexpected turn of events generated more questions than answers. Had she known even an ounce of information as to what had transpired, she may have responded accordingly. But she was blindsided. An […]
“How do you feel he asked?” I looked at him with eyes wide open. Words would not come out of my mouth. I had plenty to say! So much in fact, I barely slept the night before because I wanted to make sure I articulated EXACTLY how I was doing. Yet there I sat, mouth […]
I wrote an entire blog post, erased it, and have been staring at the screen completely dumbfounded. How do you explain the unexplainable? How can you graciously share the reality for so many, when the reality is not a simple description? I feel I need to preface this post by saying I have the most amazing […]
When life pulls and pushes you in every direction… Bow low and worship. When your heart feels as though it may explode… Bow low and worship. When you feel as though your closest friends and family have forsaken you… Bow low and worship. When the report you receive from the doctor is devastating… Bow low […]
This morning I lingered a bit longer in bed, not by choice, but out of necessity. The POTS symptoms greet me each morning before I even step onto the floor. The spinning, tremors, weakness, etc. are with me every step of the way as I pack lunches, make sure teeth have been brushed, hugs and […]
There we were pulling up to Duke Hospital. While we sat at the stop light I looked at the enormity of the structure before us. The view was different for me this time as I was a passenger going to my one year check up. I never entered the actual hospital through the front doors. […]
It was brought to my attention that October is POTS Awareness Month. I have wanted to do a post on POTS, but honestly it seems overwhelming to try to condense POTS into one blog post. The confusion that surrounds the syndrome, along with the vague understanding by the medical community makes a concise explanation impossible. […]
Lily in Grace 
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