If you find yourself feeling lonely right now, as though no one understands, you are not alone. Your journey is yours to walk, that is true. But, how you choose to walk the tightrope known as Pots is your choice. I am not speaking of the physical symptoms you are unable to control. I would […]
Talk about a loaded question…”How are you doing?” Well, let’s see. How am I really doing? How do I want to be doing? Or how do we move past this question the quickest? It’s not you, it’s us. Yes, I realize that is the best breakup excuse ever. But genuinely, we mean it. We don’t […]
There is a significant measure of strength one must ascertain in order to withstand the elements of daily life when living with chronic illness. The mental fortitude one must tap into takes great aptitude as well as sheer will. You never know the depth of strength you have within until you have no other option […]
In a moment, a simple breath, life as she knew it disappeared. How can you go from being active to suddenly bedridden? This unexpected turn of events generated more questions than answers. Had she known even an ounce of information as to what had transpired, she may have responded accordingly. But she was blindsided. An […]
“How do you feel he asked?” I looked at him with eyes wide open. Words would not come out of my mouth. I had plenty to say! So much in fact, I barely slept the night before because I wanted to make sure I articulated EXACTLY how I was doing. Yet there I sat, mouth […]
“Where is your POTS?” she asked me with a confused yet curious look on her face. Innocently waiting for an answer, she looked at my body trying to find this elusive POTS. I held back my laughter and began to describe what was different about my body. I explained how my body cannot do what […]
For some time I have considered writing a thank you letter to POTS. Maybe it’s the southern gal in me that knows you always send a thank you note no matter what you thought of the event (bless their heart). Or maybe I am learning to be thankful in all seasons. Who knows? Dear POTS, […]
When life pulls and pushes you in every direction… Bow low and worship. When your heart feels as though it may explode… Bow low and worship. When you feel as though your closest friends and family have forsaken you… Bow low and worship. When the report you receive from the doctor is devastating… Bow low […]
This morning I lingered a bit longer in bed, not by choice, but out of necessity. The POTS symptoms greet me each morning before I even step onto the floor. The spinning, tremors, weakness, etc. are with me every step of the way as I pack lunches, make sure teeth have been brushed, hugs and […]
There we were pulling up to Duke Hospital. While we sat at the stop light I looked at the enormity of the structure before us. The view was different for me this time as I was a passenger going to my one year check up. I never entered the actual hospital through the front doors. […]
Lily in Grace 
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